FAMILY WITH A CHRONIC ILLNESS: ADAPTATION AND CHALLENGES

Annisa Wuri Kartika, Wiwin Wiarsih, Henny Permatasari

Abstract


Living with a chronic illness surely can affect clients and their families. Family capacity to adapt successfully can be quite different depend on characteristic of chronic illness and family perception about the illness. Consideration of the family’s view of illness support health care professionals in finding the best resources to assist family with chronic illness. The aim of this study was to describe impact of chronic illness to clients and their family. This research use a qualitative design with descriptive phenomenological approach. Using purposive-sampling, eight families living with chronic illness were participated in this study. Colaizzi’s method which involving participants to validate results was used in the research. The theme of this study are changes in the patient's health status, family system changes and family difficulties in maintenance tasks. Conclusion of this research is that family members are the biggest support to motivate clients and also challenged as they strive to assist member diagnosed with chronic condition to stay healthy. Involving clients and families in the decision making support the efforts of families in their self-management of chronic illness. Thus nurses could provide family counseling to strengthen family coping and capacity by providing family with adequate information about illness.   

Keywords


Chronic illness; family challenge; family adaptation

Full Text:

PDF

References


Allender, J.A., Rector, C., & Warner.K.D. (2010). Community Health Nursing : Promoting and Protecting The Public’s Health. 7th Ed. Philadelphia : Lippincott Williams & Wilkins.

Branscum, A. (2010). Stress And Coping Model For Family Caregivers Of Older Adults. Tesis . Iowa State University. http://lib.dr.iastate.edu/etd

Friedman, Bowden & Jones. (2010). Family Nursing : Research, Theory And Parctice.. New Jersey : Prentice Hall.

Gomes, C,. Boas V, Foss M. (2012). Relationship Among Social Support, Treatment Adherence and Metabolic Control of DM Patient. Rev-Latno Am (Vol 20) (1) : 52-58

Grant JS, Glandon GI, Elliott TR, Giger JN, Weaver M. (2006). Problems and associated feelings by family caregivers of stroke survivors during the second and third month of caregiving. Top Stroke Rehabil. 2006;13: 66-74

Haley, W; Jessica Y. A; Joan S. G; Olivio J. C; Martinique P; David L. R. (2009). Problem and Benefits Reported by Stroke Family Caregivers : Results From a Prospective Epidemiological Study. Stroke aha Journals Org. 40: 2129-2133.

Heniwati, Thabrani, H. (2016). Perbandingan Klaim Penyakit Katastropik Peserta Jaminan Kesehatan Nasional di Provinsi DKI Jakarta dan Nusa Tenggara Timur Tahun 2014. Jurnal Ekonomi Kesehatan Indonesia. Vol 1 No 2 Desember 2016. 88-97.

Hitchcock, Schubert & Thomas. (1999). Community Health Nursing : Caring In Action. New York : Delmar Publisher.

Kershaw et al. (2004). Coping Strategies and Quality of Life in Woman With Advanced Breast Cancer and Their Family Caregivers. Psychology Health. 19 : 139-155.

Knafl, K.A, Gilliss, C,. (2002). Families and Chronicc Illness : A Synthesis of Current Research. Journal Of Family Nursing. 8 (3), 178-198.

Lim, J., & Zebrack, B. (2004). Caring Family Members With Chronic Physical Illness : A critical Review of Caregiver Literature. Health and Quality of Lifes Outcomes.

Livneh, H., & Antonak, R. (2005). Psychosocial adaptation to chronic illness and disability: A primer for counselors. Journal of Counseling & Development, 83,12-20.

Moalosi, G.F., Phatswane, J., Moeti, T., Binkin, N. , Kenyon. T. (2003). Cost-effectiveness of Home Based Care Versus Hospital Care for Chronically Ill Tuberculoasis Patients, Francistown, Botswana. International Journal Tuberculosis Lung Disease 2003 (7) :80-85.

Mursalin, Soewondo, P. (2016). Analisis Estimasi Biaya Langsung Medis Penderita Diabetes Mellitus Tipe 2 di RSUD Dr. Abdul Aziz Singkawang Tahun 2013. Jurnal Ekonomi Kesehatan Indonesia. Vol 1 No 2 Desember 2016. 71-82.

Ryan T, Enderby P, Rigby AS. (2006). A randomized controlled trial to evaluate intensity of community-based rehabilitation provision following stroke or hip fracture in old age. Clin Rehabil. 2006;20:123–131.

Schulz. R., Martire, L.M. (2004). Family Caregiving of Person With Dementia. American Journal Geriatric Psychiatry. 12 (3) : 240-249

Shimberg, E.F. (1998). Stroke : Petunjuk Penting Bagi Keluarga. Alih Bahasa : Anne Rosana. Jakarta : Pustaka Delapranata.

Smeltzer, S. C. (2010). Brunner andsuddarth’s textbook of medical-surgical nursing(12th ed). Philadelphia: Lippincott Williams & Wilkins.

Smith, M., Greenberg, J., & Seltzer, M. (2007). Siblings of adults with schizophrenia: Expectations about future care giving roles. American Journal of Orthopsychiatry (77): 29-37.

Thompson, J.J. (2009). How Chronic Illness Affects Family Relationship and The Individual. Research Paper. University of Wiscounsin-Stoute.

Townsend E, Tinson D, Kwan J, Sharpe M. (2006). Fear of recurrence and beliefs about preventing recurrence in persons who have suffered a stroke. J Psychosom Res. 2006;61:747–755.

Vedhara K Shanks N, Anderson S, Lightman S. (2000). The role of stressors and psychosocial variables in the stress process: A study of chronic caregiver stress. Psychosomatic Medicine 62:374-385.

Williams LS, Kroenke K, Bakas T, Plue LD, Brizendine E, Tu W, Hendrie H. (2007). Care management of poststroke depression: a randomized, controlled trial. Stroke. 2007;38:998 –1003.

World Health Organization.(2017). Non-Communicable Disease. Global Health Observatory (GHO) Data. http://www.who.int/gho/ncd/en/ . Diakses pada tanggal 20 Juni 2017




DOI: http://dx.doi.org/10.21776/ub.jik.2017.005.02.1

Refbacks

  • There are currently no refbacks.


Copyright (c) 2018 Jurnal Ilmu Keperawatan

Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.